Lewy Body Dementia Association’s Research Centers of Excellence Program: Inaugural Meeting Proceedings
- Peterson, Bethany;
- Armstrong, Melissa;
- Galasko, Douglas;
- Galvin, James E;
- Goldman, Jennifer;
- Irwin, David;
- Paulson, Henry;
- Kaufer, Daniel;
- Leverenz, James;
- Lunde, Angela;
- McKeith, Ian G;
- Siderowf, Andrew;
- Taylor, Angela;
- Amodeo, Katherine;
- Barrett, Matt;
- Domoto-Reilly, Kimiko;
- Duda, John;
- Gomperts, Stephen;
- Graff-Radford, Neill;
- Holden, Samantha;
- Honig, Lawrence;
- Huddleston, Daniel;
- Lippa, Carol;
- Litvan, Irene;
- Manning, Carol;
- Marder, Karen;
- Moussa, Charbel;
- Onyike, Chiadi;
- Pagan, Fernando;
- Pantelyat, Alexander;
- Pelak, Victoria;
- Poston, Kathleen;
- Quinn, Joseph;
- Richard, Irene;
- Rosenthal, Liana S;
- Sabbagh, Marwan;
- Scharre, Douglas;
- Sha, Sharon;
- Shill, Holly;
- Torres-Yaghi, Yasar;
- Christie, Tina;
- Graham, Todd;
- Richards, Ian;
- Koehler, Mike;
- Boeve, Brad
- et al.
Published Web Location
https://www.ncbi.nlm.nih.gov/pubmed/?term=30884545Abstract
The first Lewy Body Dementia Association (LBDA) Research Centers of Excellence (RCOE) Investigator's meeting was held on December 14, 2017, in New Orleans. The program was established to increase patient access to clinical experts on Lewy body dementia (LBD), which includes dementia with Lewy bodies (DLB) and Parkinson's disease dementia (PDD), and to create a clinical trials-ready network. Four working groups (WG) were created to pursue the LBDA RCOE aims: (1) increase access to high-quality clinical care, (2) increase access to support for people living with LBD and their caregivers, (3) increase knowledge of LBD among medical and allied (or other) professionals, and (4) create infrastructure for a clinical trials-ready network as well as resources to advance the study of new therapeutics.
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