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Open Access Publications from the University of California

Quality of life and psychosocial well-being among children living with HIV at a care home in Southern India

  • Author(s): Lang, T
  • Heylen, E
  • Perumpil, S
  • Shet, A
  • Perumpil, M
  • Steward, W
  • Shamban, E
  • Ekstrand, ML
  • et al.

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© 2014 Taylor & Francis. This study was designed to evaluate the quality of life (QOL) of children living with HIV at an institutional care home in Bangalore, India. The Sneha Care Home is a unique residence that provides educational and community support with a focus on physical, nutritional, medical, and psychological care for orphans and vulnerable children. Cross-sectional health measures and interview data were collected from 97 residents including 52 boys and 45 girls between 5 and 12 years of age (mean age = 9). QOL was measured with the Pediatric Quality of Life 4.0 (PedsQL) Inventory. Caregivers perceived children to have an overall higher QOL than was self-reported by children (total score 83 vs. 78). Our findings indicated self-reported QOL decreased with age of the child, while caregiver-reported QOL increased with age, suggesting a need to ensure greater psychological support for older children. Physical measures showed the children’s clinical severity of disease remained well controlled living in this residential, values-based care home.

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