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The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity.

  • Author(s): Arevian, Armen C
  • Springgate, Benjamin
  • Jones, Felica
  • Starks, Sarah L
  • Chung, Bowen
  • Wennerstrom, Ashley
  • Jones, Loretta
  • Kataoka, Sheryl H
  • Griffith, Krystal
  • Sugarman, Olivia K
  • Williams, Pluscedia
  • Haywood, Catherine
  • Kirkland, Angela
  • Meyers, Diana
  • Pasternak, Ryan
  • Simmasalam, Rubinee
  • Tang, Lingqi
  • Castillo, Enrico G
  • Mahajan, Anish
  • Stevens, Max
  • Wells, Kenneth B
  • et al.
Abstract

Objective:We describe the rationale, development, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partnered research on behavioral health and social risk factors in Los Angeles and New Orleans. Setting:A community-academic partnership across Los Angeles County and New Orleans. Methods:Review of rationale, history, structure, activities and progress in applying community partnered participatory research (CPPR) to CPPRN. Findings:Patient and community stakeholders participated in all phases of development, including local and national activities. Key developments include partnered planning efforts, progress on aggregating a large, de-identified dataset across county agencies, and development of an information technology-supported screening approach for behavioral and social determinants in health care, social, and community-based settings. Conclusion:The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakeholders.

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