UCLA

Navigation of the state and federal child welfare and special education systems in the U.S. presents significant challenges for caregivers, particularly those of children with disabilities. This dissertation explores the experiences of caregivers who were involved in these two systems, discussing the challenges they faced and analyzing the strategies and resources they utilized for effective navigation. The paper’s study included semi-structured interviews, allowing for an in-depth exploration of caregiver perspectives and experiences: emotional challenges such as denial, anger, depression, isolation, stress, and eventual acceptance were prevalent among caregivers, and the lack of support from these two systems’ service providers created multiple barriers for caregivers. Yet, finding reveal that caregivers utilized their skills, expertise, and existing relationships to effectively navigate the complexities of the two systems, illustrating that caregivers possess strong aspirations for their children's futures and demonstrate determination in advocating for their needs within the systems.