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The California Parkinson’s Disease Registry Pilot Project 2006 - 2010: An Assessment and Validation of Medical Records from Patients Living in the California Central Valley


The California Parkinson’s Disease Registry (CPDR) pilot project established in Central California to examine the feasibility of establishing a Parkinson’s disease (PD) registry for the entire state of California. PD cases, along with date of diagnosis, ICD-9 codes, and demographic information, was ascertained from 70 medical facilities in Fresno, Kern, and Tulare Counties. Cases of PD denoted by an ICD-9 code of 332.0 were used to determine crude, and gender and age specific incidence rates of PD in each county from 2007-2010. An additional random sample of 358 PD patient records (121 complete records) were selected for further analysis of clinical symptoms. When validated against UK Parkinson’s Disease Society Brain Bank Research Center criteria (UKBB PD) diagnostic criteria, according to the charts, 67.8% of all reported cases were considered to be correctly diagnosed as a parkinsonian syndrome; of these 51.2 % were considered to be definite cases of idiopathic PD.

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