UC Irvine

This study was designed to explore the relationship between the quality of life of children on the autism spectrum and the services they are receiving. Although there are groups of people who do not believe that children on the spectrum are in need of treatment, therapies have become the expected following a diagnosis of autism spectrum disorder. The aim of this study was to identify whether certain types of therapies and services were associated with better quality of life for children with autism.

An anonymous survey was distributed online to individuals within the autism spectrum disorder community. Participants were parents of one child on the spectrum (2-12 years old); 47 individuals completed the survey. Results indicated that certain therapies are associated with reported improvement in some categories but not others. Applied Behavioral Analysis therapy was associated with reported ability to communicate, happiness in public, and happiness at school. Speech therapy was associated with reported improvement in a child’s ability to perform physical tasks. Understanding the relationship between the types of service received or the amount of time participating in services and reported improvement levels in various areas of life will inform health care professionals’ perspective regarding the value of therapies. Genetic counselors serve a unique role because they are often the team member first connecting with the family and helping initiate services. This research broadens the understanding of the impact that therapies may have on quality of life and enhance the ability of professionals to provide guidance to families.