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Trust in Community-Engaged Research Partnerships: A Methodological Overview of Designing a Multisite Clinical and Translational Science Awards (CTSA) Initiative.

  • Author(s): Kim, Mimi M
  • Cheney, Ann
  • Black, Anita
  • Thorpe, Roland J
  • Cene, Crystal Wiley
  • Dave, Guarav J
  • Schaal, Jennifer
  • Vassar, Stefanie
  • Ruktanonchai, Corrine
  • Frerichs, Leah
  • Young, Tiffany
  • Jones, Jennifer
  • Burke, Jessica
  • Varma, Deepthi
  • Striley, Catherine
  • Cottler, Linda
  • Brown, Arleen
  • Sullivan, Greer
  • Corbie-Smith, Giselle
  • et al.
Abstract

Community-engaged research (CEnR) builds on the strengths of the Clinical and Translational Science Awards (CTSA) framework to address health in underserved and minority communities. There is a paucity of studies that identify the process from which trust develops in CEnR partnerships. This study responds to the need for empirical investigation of building and maintaining trust from a multistakeholder perspective. We conducted a multi-institutional pilot study using concept mapping with to better understand how trust, a critical outcome of CEnR partnerships, can act as "social capital." Concept mapping was used to collect data from the three stakeholder groups: community, health-care, and academic research partners across three CTSAs. Concept mapping is a mixed-methods approach that allows participants to brainstorm and identify factors that contribute to a concept and describe ways in which those factors relate to each other. This study offers important insights on developing an initial set of trust measures that can be used across CTSAs to understand differences and similarities in conceptualization of trust among key stakeholder groups, track changes in public trust in research, identify both positive and negative aspects of trust, identify characteristics that maintain trust, and inform the direction for future research.

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