- Yang, Mia;
- Samper‐Ternent, Rafael;
- Volpi, Elena;
- Green, Aval‐Na'Ree;
- Lichtenstein, Maya;
- Araujo, Katy;
- Borek, Pamela;
- Charpentier, Peter;
- Dziura, James;
- Gill, Thomas M;
- Galloway, Rebecca;
- Greene, Erich J;
- Lenoir, Kristin;
- Peduzzi, Peter;
- Meng, Can;
- Reese, Jordan;
- Shelton, Amy;
- Skokos, Eleni A;
- Summapund, Jenny;
- Unger, Erin;
- Reuben, David B;
- Williamson, Jeff D;
- Stevens, Alan B
Introduction
Pragmatic research studies that include diverse dyads of persons living with dementia (PLWD) and their family caregivers are rare.Methods
Community-dwelling dyads were recruited for a pragmatic clinical trial evaluating three approaches to dementia care. Four clinical trial sites used shared and site-specific recruitment strategies to enroll health system patients.Results
Electronic health record (EHR) queries of patients with a diagnosis of dementia and engagement of their clinicians were the main recruitment strategies. A total of 2176 dyads were enrolled, with 80% recruited after the onset of the pandemic. PLWD had a mean age of 80.6 years (SD 8.5), 58.4% were women, and 8.8% were Hispanic/Latino, and 11.9% were Black/African American. Caregivers were mostly children of the PLWD (46.5%) or spouses/partners (45.2%), 75.8% were women, 9.4% were Hispanic/Latino, and 11.6% were Black/African American.Discussion
Health systems can successfully enroll diverse dyads in a pragmatic clinical trial.