The Collaborative Approach for Asian Americans and Pacific Islanders Research and Education (CARE): A recruitment registry for Alzheimer's disease and related dementias, aging, and caregiver‐related research
- Park, Van M Ta;
- Meyer, Oanh L;
- Tsoh, Janice Y;
- Kanaya, Alka M;
- Tzuang, Marian;
- Nam, Bora;
- Vuong, Quyen;
- Bang, Joon;
- Hinton, Ladson;
- Gallagher‐Thompson, Dolores;
- Grill, Joshua D
Published Web Location
https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.12667Abstract
INTRODUCTION: Clinical research focused on aging, Alzheimer's disease and related dementias (ADRD), and caregiving often does not recruit Asian Americans and Pacific Islanders (AAPIs). METHODS: With funding from the National Institute on Aging, we designed and launched the Collaborative Approach for AAPIs Research and Education (CARE), a research recruitment registry to increase AAPIs' participation in ADRD, aging, and caregiving research. We present the design of this novel recruitment program. RESULTS: CARE uses community-based participatory research methods that are culturally and linguistically appropriate. Since CARE's launch, it has enrolled >7000 AAPIs in a 1-year period. The majority enrolled in CARE via community organizations and reported never having participated in any kind of research before. CARE also engages researchers by establishing a recruitment referral request protocol. DISCUSSION: CARE provides a promising venue to foster meaningful inclusion of AAPIs who are under-represented in aging and dementia-related research.
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