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Informatics-enabled citizen science to advance health equity
- Valdez, Rupa S;
- Detmer, Don E;
- Bourne, Philip;
- Kim, Katherine K;
- Austin, Robin;
- McCollister, Anna;
- Rogers, Courtney C;
- Waters-Wicks, Karen C
Published Web Location
https://doi.org/10.1093/jamia/ocab088Abstract
The COVID-19 pandemic has once again highlighted the ubiquity and persistence of health inequities along with our inability to respond to them in a timely and effective manner. There is an opportunity to address the limitations of our current approaches through new models of informatics-enabled research and clinical practice that shift the norm from small- to large-scale patient engagement. We propose augmenting our approach to address health inequities through informatics-enabled citizen science, challenging the types of questions being asked, prioritized, and acted upon. We envision this democratization of informatics that builds upon the inclusive tradition of community-based participatory research (CBPR) as a logical and transformative step toward improving individual, community, and population health in a way that deeply reflects the needs of historically marginalized populations.
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