Statement from the frontal fibrosing alopecia international expert alliance: SOFFIA 2024
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Statement from the frontal fibrosing alopecia international expert alliance: SOFFIA 2024

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Abstract

BACKGROUND: As the incidence of frontal fibrosing alopecia (FFA) continues to rise, there is a need for an optimal treatment algorithm for FFA. OBJECTIVE: To produce an international consensus statement on the treatment modalities and prognostic indicators of FFA. METHODS: Sixty-nine hair experts from six continents were invited to participate in a three-round Delphi process. The final stage was held as a virtual meeting facilitated via Zoom. The consensus threshold was set at ≥66%. RESULTS: Of 365 questions, expert consensus was achieved in 204 (56%) questions following completion of the three rounds. Three additional questions were included at the final meeting. The category with the strongest consensus agreement was disease monitoring (9; 100%). Questions pertaining to physical therapies achieved the least category consensus (15; 40%), followed by systemic therapy (45; 43%). LIMITATIONS: The study lacked sufficient representation from Africa and South America. CONCLUSION: SOFFIA highlights areas of agreement and disagreement among experts. Robust research is warranted to provide evidence-based treatment recommendations.

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